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~ The Marguerite Chronicles

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Tag Archives: Caregivers

A Cuppa Cuppa Cup

24 Sunday Jun 2018

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Caregivers, Christmas, Eldercare, Family, Marguerite, Memories

THE MARGUERITE CHRONICLES:  June 23, 2018

A couple of years ago, Chip and Katie gave Memomma a  coffee mug all her own, big and bold, pink with white stripes, and the slogan “QUEEN FOR A DAY” — a perfect gift for the coffee-guzzler Daddy loved to call Queenie.  In keeping with the name, the mug held a queen-sized serving of hot java.  If you knew my mama, you knew she wanted a LOT of coffee, at every meal, three times a day, no matter the season, plus several cups in between.  And if we were in a restaurant, she’d order a glass of water on the side.  Not that she drank the water — she’d grab a spoon and fish a couple of ice cubes out of the glass to cool down the coffee.  And then she’d ask the waitress to warm it up with a refill, and start the drill all over again.

Mama enjoyed her “Queen for a Day” mug, even after we placed  an “OUT OF ORDER” sign on the Keurig  when she forgot how to operate it.  My husband, George, fixed coffee for her often, to keep her from overflowing the Keurig with extra water, and by brewing it for her, fooled  her into using doctor-ordered de-caf  so we could all get some sleep. But, to paraphrase Daddy, that was sort of like tinkling in the ocean. None of us ever got any sleep.  George quietly helped me take care of Mom for more than three years, and whenever I thanked him, he answered, “She was never anything but nice to me.”

Four months after Mama’s last cup of coffee, I walked into the living room and noticed that the Queen mug was up on the mantelpiece, right next to my Williamsburg  candlesticks, where it didn’t match a thing.  What?  I couldn’t believe somebody — probably one of the grandkids, who love to grab a slightly naughty brew at Grandmommy’s house —  had left a dirty cup of coffee up on the mantel to mold, so I  stepped up on the hearth to grab it.

But I heard a shout, and my  my hand stopped in mid-air.

“What are you doing?” George hollered from the sofa, and this is a man who rarely raises his voice.

“I’m taking this coffee cup back to the kitchen.”

“NO.  You can’t.”

“I can’t?   I couldn’t imagine why not — we may not be the most OCD people in the world, but we don’t normally leave dirty dishes lying around the house.  I looked into the cup, puzzled.  Not a drop of  khaki-colored brew.   Clean as a whistle.

“What’s the problem.  Why not?”

“It’s retired,” he smiled. “RE-TIRED.”

And I cried.

How lovely.

 

 

 

 

HOSPICE-AT-HOME

06 Tuesday Feb 2018

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Caregivers, Dementia, Eldercare, Family, Marguerite

The Marguerite Chronicles ~ February 6, 2018:

Marguerite’s ups-and-downs over the past week have been epic — several times we thought she was checking out. Still, her physical condition didn’t meet Medicare guidelines for general inpatient status, so we paid for five expensive nights to give ourselves some breathing room. She enjoyed all manner of relatives visiting over the week-end, though she seemed barely conscious through much of it.  Two daughters, two sons-in-law, a sister, a niece, a nephew, four grandsons, two great-grandsons, and a great-granddaughter stood in loving prayer at her bedside. We didn’t think she’d last till  her Tuesday morning discharge time.

And then, last night, she woke up.  Somebody recharged the Energizer Bunny, and this morning, we found her trying to climb out of the bed — after four weeks of being unable to use her arms or legs or even to roll over.

So, as previously planned, a hospital bed and other hospice-at-home equipment was delivered, and a transport brought her back to the condo. She was awake.  Joking. Talking in sentences. And listening to her grand-nephew who happens to be a bona-fide composer, symphony pianist, and Uber driver tinkling the ivories from the living room.  “I just love you more every day!” she said to him.

People in their last days often rally for a little while before entering a final downturn, so we don’t know for sure if this is a rally or an actual improvement after finally detoxing from the medication that made her comatose.  Time will tell.  But no matter, we’ll take it.

So, drop by anytime.  The Queen is holding court!

Back To Myrtle Manor — The Nursing Home, not the TV Show…

28 Thursday Dec 2017

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Caregivers, Dementia, Eldercare, Family, Marguerite

THE MARGUERITE CHRONICLES — December 27, 2017:

I rushed back to MB today after being in Powhatan for Christmas,  and made a grand entrance into Myrtle Manor around 7 PM.  Memomma Marguerite qualified for in-patient rehab after a 3-day hospital stay due to a second seizure that occurred on December 9.  She had the first seizure that we knew of in November, but it’s likely there were others that we didn’t see.  The first time, I was giving her a shower — her hair was soaped up, all was well, then all hell broke loose. I’d left the phone on the kitchen table and when the seizure was over, I had to prop her up against the bathtub wall for a minute to run call 911. This time, I was dressing her after a shower when it happened, but I’m proud to say that my cellphone was in arm’s reach.  I’m getting this eldercare thing down pat, one emergency at a time. It’s a fine science, y’all. Requires talent.  The kind I didn’t get naturally. My music education is fairly useless for this, but it helps preserve my sanity.

The seizures are attributed to shrinkage of the aging brain, so if you have longevity genes, take notes.  Years ago, during one of Daddy’s laps around Baptist Hospital, we coined the term “oldage,” pronounced ‘oldige’ as opposed to ‘old age.’

You had to be there I guess, but Daddy was a real pain when his blood sugar was up.  And with all the chocolate pie he demanded from every Greek restaurant in Winston-Salem, his blood sugar was always up. And rooms in Baptist Hospital weren’t private.  A doctor was interviewing a hard-of-hearing patient in the next bed, and shouted, “DOES THE NUMBAGE GO ALL THE WAY UP YOUR LEG?”  And Daddy answered, in the booming voice that learned to whisper in a sawmill,  “YOU DON’T HAVE TO HOLLER — I CAN HEAR YOU ALL THE WAY OVER HERE.  AND THERE’S NO SUCH DAMN WORD AS ‘NUMBAGE!’

We cringed, apologized, and attributed his outburst to oldage.  So now, Mama’s got a serious case of it, but instead of hollering, she turns on the charm — still the Homecoming Queen, the Belle of the Ball, General Eisenhower’s Dance Partner, and Real Estate Broker Par Excellance.

She was thrilled to see me tonight, and declared that it must be mental telepathy that I came, because she had been looking for a telephone directory all afternoon so she could call me.

Her uh, ‘dimension’, as the divine Miss Malaprop calls it, is all over the map. She knew the correct names of grands and great-grands in the Christmas photos I showed her, then asked if George Holt is in Charlotte. Uh, noooo, George is in Richmond, but she used to live in Charlotte, so the dots do connect in some fashion.

“Where did you park the car?” she asked, several times. “In the parking lot,” I answered, several times. H eyes filled with wonderous delight. “I didn’t even know they had a parking lot here!”  In her mind, we’re talking Disneyland.

Well, we don’t really want her to know there’s a parking lot, much less a car — this is the woman who said, “I’ll stop driving when you lock me in jail and throw away the key.” Then, she totaled her minivan when she turned in front of oncoming traffic while defying doctor’s orders. Two weeks later, she called a taxi and kidnapped her own husband from his nursing home. Took him home to her independent living apartment with nary a needle full of insulin nor a fridge full of food.  A nightmare we don’t want to repeat. When people tell me how sweet my mama is, they don’t know the half of it.  She has her sweet moments, but she didn’t get to be 97 years old by being sweet. But she is quite the charmer.  So, if you go to see her, keep an eye on your keys.

 She’s back in the fifties when it comes to phone calls, and no longer knows how to use her  cell phone. “We need to write down everybody’s phone number so we can call them.”    I’ve explained a dozen times that my phone contains everybody’s phone number, but it doesn’t compute. And this is the woman who got her first computer at age 70, took a class in  Direct Operating System, then somehow deleted it from her computer, while we were visiting them on Sanibel Island — she lost her DOS, and barely came up for air during our whole vacation.  Now she doesn’t know DOS from Windows, but every time she sees an iPhone, she says she wants one –until I tell her it costs seven hundred dollars.

 

She’s always had a severe case of gadget-itis.  She had the first microwave oven in town, and the first of everything else, too.  We had an electric ironer, for goodness sake.  You probably don’t even know what that is — but it was a commercial grade ironing machine that pressed sheets, tablecloths, and the like on a big roller, operated with knee-and foot-controls. She and our maid we experts — they could even do shirts on it.  And  every electric cookware gadget that came on the market found its way to our kitchen:  steamers, crockpots, electric skillets, fondue pots, food processors, seal-a-meal machines, you name it  — hence, extra cabinets added on every wall, whether they matched the originals or not.  One year — I think it was the year of the electric comb —  I asked Daddy what we should get her for Mother’s Day. It was the age of under-counter everythings — can openers, radios, toaster ovens.  Daddy shook his head.  “Heck, honey, she has everything.  I can’t think of a thing — unless you can find her an electric  a** wiper.  But it’d hafta be the undercounter model.”

She is still very particular about determining front from back when putting on her clothes — though she might try putting her panties on over her pants.  And I think of  the beautiful clothing she made, the gorgeous wedding gowns, the draperies, and the furniture she upholstered, and wonder at how a brain that could fashion such complex items can get so mixed up.

But when it comes to her shoes, she’s careful about right and left.  And  obsessed.  It’s as if there’ll be some kind of Cinderella catastrophe if one dainty little toe touches the bare floor.  We go to the restroom.  I say, “Ok, Mama, now take off your shoes.” She looks at me like I’ve lost my mind, but the deer-in-the-headlights look tells me she’s lost hers, too, and she asks, “Why?”

 I explain that she needs to take off her pants, and they won’t come off over her shoes.  So, she carefully slips them off.  I take her pants off,  and turn my back to fold them up. And before I can turn back around, those deft little dancing feet slide back into the ruby slippers — and I try not to cuss, and have to say again, with as much patience as I can muster, “Ok, Mama, now take your shoes off.”  And again, she looks at her idiotic daughter and says, “Why?”  And we put new pants back on, but before they’re pulled up good, the dadburn feet are already feeling for the shoes.

And I say, “Mama, if you would be half as concerned with keeping your underwear dry as you are with your shoes, I will be soooo happy.”  And we laugh and carry on,  and the next trip to the loo, we do it all over again.

When Chip and Katie visited her on Christmas Eve, she looked at them and said, “Where are our parents?” and made several other really off-the-wall comments, so I think some medication changes plus the disorientation of being in nursing care takes a toll on her brain function.

“Where do we pay the bill here when we check out? I don’t have any money with me.”  Deja-vu:  Daddy asked that question a hundred times when he was hospitalized.  And a hundred times, we answered, “You don’t have to pay a dime.  Medicare and Duke Power are taking care of it.”

“Where are you sleeping tonight?” She asked me — several times. I told her I’d be at our regular condo in NMB, and she said she needed to go up there so she could see what it looks like — never mind that she has practically lived here for the past two years.

They’re working on adjusting her depakote levels, which are too low. I’ve learned from our  DNA profiles via promethease.com that she and I are slow metabolizers of many medications, so early or stronger doses are sometimes necessary.  It takes multiple shots for me to get numb in the dentist chair, but 8 hours later, when most people have normal feeling back, my whole face is frozen.  So, it’s beginning to make sense that the med they had her on wasn’t strong enough, and that this new medication is slow to act as well. Bingo.

Physically, she is remarkably stronger. She told me she goes to physical therapy twice a day in the ‘phys ed room,’ and is getting good muscles. And she hopped up out of bed in a heartbeat — which is a little scary, because she does it so quietly.  We’ll have to put the alarm back on the front door when she returns.

We have a meeting with her care team tomorrow to discuss her progress and plans for discharge, but I know she will be there at least through January 3. She was excited when I mentioned the names of family members who are planning to come visit in the New Year.  Even when she is feeble, she’s the strongest woman I’ve ever seen.

Thanks for all your care, prayers, and encouragement. She’s getting torqued up. I hope soon it’ll be my turn, ’cause I’m in need of some serious torque-ing, like on a cruise ship…

SHUCKS!

23 Tuesday May 2017

Posted by BethStillSings in THE MARGUERITE CHRONICLES, Uncategorized

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Caregivers, Dementia, Eldercare, Family, Humor, Marguerite

THE MARGUERITE CHRONICLES ~ May 23, 2017:

Mama’s much quieter these days, quieter than those who knew her would ever have imagined. But her great personality is still intact, and shines through the confusion whenever we need some comic relief.  We need it often.

Yesterday, I was helping her out of the shower, but I hadn’t closed the bathroom door.

She looked up at the open door, and through the fog of a 97-year-old brain mixed with shower mist,  said, “There aren’t any men here, are there?”

“No,” I assured her. “Just you and me.”

She grinned, and that  mischievous  Marguerite-sparkle appeared in her eye.

“Awww, shucks!”

Nail Polish – The Marguerite Chronicles, July 23, 2016

09 Friday Dec 2016

Posted by BethStillSings in THE MARGUERITE CHRONICLES

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Caregivers, Eldercare, Marguerite, Nail Polish, Nonogenarians

So, for once, I get my 96-year-old mama up, dressed, fed, medicated, and looking cute as a button for a trip to a funeral in Raleigh; and we’re actually gonna leave early rather than lat.  I place her at the kitchen table with instructions to stay put while I get dressed.

And while I’m dressing, she grabs a hot bottle of forbidden nail polish and sneaks out to the car with it.

I come down the stairs and out the door to find her painting her nails IN MY CAR, and she has spilled half the bottle down her very favorite dressy top.

I cuss, (which I rarely do) and yell “Dammit, Mama” while pulling the top off over her head, leaving her half nekkid in the car with Micah hiding his eyes in the back seat.

I rush inside for acetone, & pour it all over the shirt, but it’s like tinkling in the ocean. Not enough acetone in Virginia to break down that stuff. The top is permanently damaged. And our extra half hour plus 10 more minutes disappears.

I’m completely undone that I lost my patience with her, because I’ve promised myself that I won’t do that.

And then I think about the switching I’d have gotten for pulling such a trick in her lavender ’65 Bonneville Broagham with the purple satin seats and I’m glad I have not yet spilled a bottle of nail polish down my favorite shirt.

And when I do, I hope my sons will yell “Dammit, Mama” at me and not feel bad about it.

I’ve Fallen and Can’t Get Up!

05 Monday Dec 2016

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Caregivers, Eldercare, Falls, Marguerite

The Marguerite Chronicles, August 22, 2016, 7:29 AM:

Mama’s voice came from the dining room.

“Somebody come help me!”

I ran towards the voice and nearly tripped over her. She was on the floor with her head pointing north – her walker was cattywampus, on the floor, heading east, a dining room chair was turned over, pointing west.

Once we determined that she was fine, I had two questions: how’d she do it, and why’d she do it??

ROOSTERS?

05 Monday Dec 2016

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Caregivers, Eldercare, Marguerite

THE MARGUERITE CHRONICLES, AUGUST 31, 2016. 3:19 AM:
A loud, high-pitched, prolongued screech, amplified by the baby monitor next to my bed, propelled me straight up, wide awake and into heart palpitations.

If you’ve ever had chickens, you know that sound. Roosters aren’t born knowing how to crow, and when they start practicing, it sounds plumb awful – other-worldly – nothing else anywhere sounds like that.

I ran back toward Mom’s bedroom, wondering if I’d find a stray rooster in full-out attack mode, or some kind of crazed intruder, but the crazed intruder thought didn’t kick in until I’d passed by all the kitchen knives.. Unarmed, I walked into the room.

Nobody. Nothing. Nada. Zilch – except for Mama, who’d pulled the covers up over her head and was still breathing, no blood anywhere, sleeping peacefully after whatever crazy dream made her screech like an adolescent rooster.

It was a good 2 hours before I could get back to sleep. And that, my friends, is why I fell so easily into rainy-afternoon-nap mode. Wonder what tonight holds?

05 Monday Dec 2016

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Caregivers, Dementia, Eldercare, Marguerite

THE MARGUERITE CHRONICLES: SEPTEMBER 16, 2016, PART 4:
3:00 AM. George elbowed me awake to say, “Your mother’s in OUR bathroom flipping the lights on and off.”

Yep. She was. She had to walk past her bathroom into our room to get there, and she’s never done that before. I guided her back to bed, but she was in the throes of a full-blown Looney Toons episode, talking nonstop and intermittently making sense, and if her brain thought it, she said it.

Up again at 6, talking to the Choctaws. At 8, she snuck downstairs, this woman who hasn’t taken her own pills for 5 years, and bragged to our houseguest that she had taken her morning medicine.

Only it was her nighttime medicine.

Which meant she was going to be groggy on top on wacko. And then, Sister Margie calls from the beach condo to say there’s standing water on the floor of a bedroom and the sheetrock is wet, and I started calling Benchmark mulltiple times to get somebody over there…and then we were due at UHaul to pick up a truck for getting some furniture from my brother-in-law in Fredericksburg and there is not one spare inch in this house for another stick of furniture even if it is a zillion-dollar fine reproduction mega-desk, and I had to talk Mama down the stairs and out to the car one leg at a time because her brain was on the night shift.

There was nothing to do but strap her in a seat belt, pick up some grandsons and haul ’em all up I-95. And now we have a UHaul truck out front and no place to put the stuff that’s in it even though we do have a double garage and an 8-stall barn, and nobody to help unload it even if we did have room, and our front yard already looks like West Virginia but it has been too hot this summer for me to clean out the garage. So it’s not just Mama who’s Looney Toons.

The apple didn’t fall far, and it whacked me on the head on the way down. 

About and OUT

05 Monday Dec 2016

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Caregivers, Eldercare, Emergency Room, Marguerite

THE MARGUERITE CHRONICLES: 21 SEPTEMBER 2016.

George had made some surprise dinner reservations – I had the boys lined up to come and Memomma-sit, and we planned to do something special. (I have no idea what, because he won’t tell me.)

BUT — our day started with Mama needing medical attention. I told her we’d go to the doc.

“I’m too weak to get to the car. You better call those 911 people.”

So, I did, and the Powhatan Rescue Squad (the Squishy-Squash, as Emily used to call it when Chip was a volunteer) sent 2 fine EMT’s to help, and they hauled her to the hospital.

The ER at St. Francis was packed — they were OUT of rooms, but she got prompt attention, and they found that she had a raging UTI, in spite of preventative antibiotics — and it presented differently than the many she has had before. I had nothing to eat the entire day. though one of the kind staff brought me a little can of Pepsi.

We got to the hospital at noon, and eight hours later, we left to get prescriptions filled.  I  dashed into Panera to grab something for both of us to eat while Groggy-Mama reclined in the car. And Panera, the people who MAKE bread, were OUT of baguettes, soft rolls, and all other side items that I wanted. And OUT of most of the 99-cent bakery items offered with the meal.. And OUT of the green tea I craved. Disappointed, I dashed out with something that would suffice, and drove to Walgreen’s.

And guess what? They were OUT of one of the prescribed medications. Can’t get it till Friday. So, I said I’d take what they filled, and to put the unused prescription with it so I could take it elsewhere. Grabbed the bag through the drive-thru window, and halfway back home, realized they had not put the unused script back in the bag.

But the good news is that Mama was able to walk up the stairs to get into bed, and unlike the Emergency Room, Panera and Walgreen’s, she is not OUT of anything. For now!

Lipstick

05 Monday Dec 2016

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Caregivers, Dementia, Eldercare, Humor, Marguerite

The Marguerite Chronicles, November 10, 2016:

Geriatric doctors have explained to us that people of Mama’s age will often rifle through anything on countertops, in closets, boxes, etc., and not to be surprised if, in the middle of the night, a closet door is open, she sees clothing, and decides to get dressed. Every night this week, we experienced variations on that theme. She and I shared a hotel room in Greenville, SC, so my things were stored on the lavatory.

Night #1 – 2 AM — she returns to bed after a trip to the loo. I tuck her into bed, and glance down at her face — she is completely lipsticked-up — in MY shade. I don’t like to share lipstick with anybody I’m not kissing, even if it is my Mama, so I turn off the lights, sneak back to the bath, grab all the lipstick and hide it. As if that will solve the problem. Right..

Night #2 — 2 AM -she gets up and I go to check on her. I have some stuff that’s supposed to cover up my Herman Munster scar, and the tube looks like lip gloss. Mama has found it, and is leaning over the counter, peering into the mirror, and applying a heavy coat of flesh-colored Dermablend to her lips. Now she’s the one that looks like a Munster. So, I help her back to bed, then tiptoe back to hide the forbidden fruit.

Night #3 — 2 AM — yep, we’re on a roll. Only this time, she’s carefully applying black mascara to one eyebrow. . The woman is obsessed with her eyebrows. One black eyebrow from Greenville to Columbia – all day long. Tonight, we’re back at the beach, and, oh, sweet bliss, we have separate rooms and separate baths, and there is NO make-up in her line of sight. But I have hidden everything anyway!

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